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Just Like Me!: A Book About A Girl with a Rare Disease

by Anne Rugari

A child’s life beyond a diagnosis

Regular price $20.51 USD
Regular price $32.05 USD Sale price $20.51 USD
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AlbakiReads Editorial

A child’s life beyond a diagnosis

Inspired by Gina Rugari, who was diagnosed with Krabbe disease shortly after birth, this book connects a rare condition with the everyday details of a young person’s life. Gina’s interests included Girl Scouts, soccer, art, and American Idol; the account also describes changing physical abilities and her later role as a teacher. These details frame the book’s message about recognizing shared childhood experiences alongside difference and disability. It offers a personal starting point for conversations about rare disease, inclusion, and understanding children who are differently abled.

Good fit for readers who enjoy

  • Young readers interested in stories about disability and rare disease
  • Families and educators seeking a starting point for conversations about inclusion
  • Readers who appreciate personal accounts centered on a child’s life and interests

Themes

Rare diseaseDisability and inclusionShared childhood experiencesPersistence and accomplishment

Based on publisher information and book metadata.

Book overview

Just Like Me! was written to help all children understand that boys and girls with any rare disease are just like them. They may look or act different, but inside they are just kids, like them. Hopefully the book will help encourage understanding of all children who are differently-abled. Such an important life lesson!

The little girl in this book was inspired by Gina Rugari. Gina was diagnosed with Krabbe disease, a leukodystrophy, just weeks after she was born. Her journey to high school was filled with joy, laughter, tears, struggles and so many accomplishments. She loved crazy painted finger nails, Girl Scouts, and watching American Idol. She made art, played soccer, and was great on the computer. Even though she continued to lose muscle control and finger dexterity during her life she became a wonderful teacher. She was a lesson in love, bravery, and persistence for so many classmates, teammates, friends and adults.

Gina's smile could light up a room. Please use the story in this book to give your smile away to someone who may be different in some way, but is Just Like You!

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