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Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability

by Christie Cox

Self-advocacy and daily life with hypermobility

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AlbakiReads Editorial

Self-advocacy and daily life with hypermobility

Christie Cox approaches hypermobile Ehlers-Danlos syndrome from the perspective of a fellow patient, addressing the emotional as well as physical dimensions of chronic illness. The guide brings together her personal experience, self-advocacy advice, questions for reflection, and interviews with doctors and advocacy groups. It also offers guidance on explaining hEDS to loved ones. Those elements make the book broader than a discussion of symptoms: it considers how someone living with a difficult-to-understand condition can seek support and take part in decisions about their care. Its medical and coping guidance is presented as the book’s advice, not as a substitute for individualized care.

Good fit for readers who enjoy

  • Adults living with hEDS or joint instability
  • People seeking self-advocacy ideas for chronic illness
  • Loved ones wanting to understand hEDS

Themes

Hypermobility and hEDSChronic illness self-advocacyEmotional impact of illnessCommunication with loved ones

Based on publisher information and book metadata.

Book overview

How to Deal - and Heal - for those with Rare Chronic Illness like EDS

 

Tired of being told there's no name or treatment for your illness?

 

That it's all in your head or that your pain can't be real because you're too young/old/pretty/bright/healthy/normal to have a chronic disorder?

 

What if instead there was someone who knew what you were going through and could teach you strategies for coping with rare chronic illness?

 

This is not a false hope. You can turn pain into possibility with this life-changing book that can help everyone with elusive hypermobile Ehlers Danlos Syndrome (hEDS) - from those newly diagnosed to those who have suffered in silence for decades. Wherever you are on your journey navigating the complexities of chronic illness, you're not alone.

 

In Holding It All Together When You're Hypermobile, Christie Cox explores not only the physical effects of hEDS but its emotional impact as well. As a fellow patient and medical rarity, known to doctors as zebras, she's experienced her body's betrayal and suffered through the myriad complications stemming from this disease. But she's also found a way out from the depths of this life-altering disorder with wisdom you can turn into hope.

 

As a self-advocacy guide, she offers practical, no-nonsense advice about living with chronic illness and the concrete steps you can take to achieve a new normal. In her book, you'll discover...

 

  • A healing prescription for the miracle of the modern mindset

 

 

  • A look at the latest scientific research on the edge of answers

 

 

  • Q&A interviews with expert doctors and advocacy groups

 

 

  • Guidance for how to help loved ones better understand hEDS

 

 

  • Christie's own inspiring story of how she came to live her best life

 

 

  • Lessons, questions and quotes to inspire your search for answers

 

 

Holding It All Together When You're Hypermobile gives you the tools and resources you need to get back to living the life you want. Reading it will not only boost your confidence but empower you to change your life for the better.

 

To learn more about Christie's book, visit www.holdingitalltogether.com

 

If you want to learn more about Christie's advocacy work, visit www.journey2joyous.com

 

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