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You're Not Alone

by Adrienne J. Ferguson

A personal account of living with hydrocephalus

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AlbakiReads Editorial

A personal account of living with hydrocephalus

Adrienne J. Ferguson recounts childhood hydrocephalus, repeated shunt revisions, and the experience of being teased for her shaved head and stutter. The account then traces her education and work in television production and editing, alongside a later emergency shunt replacement. Ferguson connects these experiences to the creation of A Friend Like Me, a doll company for children with similar experiences, and to her aim of writing for people living with hydrocephalus. The book brings together illness, childhood, education, career, and advocacy in a first-person life story.

Good fit for readers who enjoy

  • Adults interested in personal accounts of living with hydrocephalus and undergoing brain surgery.
  • Readers interested in stories connecting health experiences with education, work, and advocacy.
  • Those exploring the experiences behind A Friend Like Me, a doll company for children with similar experiences.

Themes

Living with hydrocephalusChildhood and medical surgeryResilience and self-definitionEducation and careerAdvocacy and representation

Based on publisher information and book metadata.

Book overview

I was diagnosed with Hydrocephalus when I was six (6) years old and after my first major brain surgery, I had to have my entire head shaved completely bald. On top of now being a little girl with a newly bald head, I also stuttered, so I was often teased for both. I had brain surgery, having my shunt revised, three (3) times by the time I was seven years old. With going through so much at such a young age, I was determined to not let any of that define my life. I graduated from Redan High School with a 3.5 GPA and I then went on to college at Clark Atlanta University where I obtained my Bachelor's Degree in Mass Communications. After completing college, I started working as a Television Producer/Editor and in 2008 I had the honor of winning an Emmy Award for editing a two-part documentary on the Holocaust. After that award, I won six (6) Telly Awards and in 2010, a Gabby Award. After 29 years of living with my shunt, on April 8, 2014, I had to have emergency surgery and my shunt had to be replaced again. While I was at home recovering, I came up with the idea to start "A Friend Like Me", which is a doll company for children who were just like me, and I also wanted to write a book to let everyone who has Hydrocephalus know that we can still live normal and successful lives.

 

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