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Schuyler's Monster: A Father's Journey with His Wordless Daughter

by Robert Rummel-Hudson

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A father’s account of diagnosis, advocacy, and finding a voice

$19.55 USD
$32.59 USD $19.55 USD
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Paperback New English

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AlbakiReads Editorial

A father’s account of diagnosis, advocacy, and finding a voice

Robert Rummel-Hudson recounts his family’s ongoing response to his daughter Schuyler’s inability to speak and her diagnosis of bilateral perisylvian polymicrogyria, a rare neurological disorder. The book traces the uncertainty surrounding early developmental concerns, the search for answers through medical appointments, and the practical struggle to secure support for Schuyler’s learning and communication. Alongside questions of disability and education, it frames fatherhood as a process shaped by self-doubt, persistence, and the relationship between parent and child. The memoir keeps Schuyler’s needs and presence central while examining the systems her family must navigate.

Good fit for readers who enjoy

  • Readers interested in family memoirs about parenting a child with disabilities
  • Parents and caregivers navigating diagnosis, education, or communication support
  • Those seeking accounts of disability advocacy within schools and society

Themes

ParentingChildhood disabilityDiagnosisCommunicationEducational advocacy

Based on publisher information and book metadata.

Book overview

When Schuyler Rummel-Hudson was eighteen months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

Once they knew why Schuyler couldn't speak, they needed to determine how to help her learn. They took on educators and society to give their beautiful daughter a voice, and in the process learned a thing or two about fearlessness, tenacity, and joy.

More than a memoir of a parent dealing with his child's disability, Schuyler's Monster is a tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs.

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