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Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor's Soul

by Robert Macauley

Palliative care shaped by personal history

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AlbakiReads Editorial

Palliative care shaped by personal history

Robert Macauley’s account connects his work in pediatric palliative care with a childhood experience of pain he says influenced his career choice. The description challenges the common association of palliative care with dying alone: Macauley presents it as care concerned with living, drawing on stories from his work with seriously ill children and families. His role as both a doctor and an Episcopal priest also places medical care alongside spiritual consolation in difficult circumstances. The book’s central thread is the relationship between a caregiver’s personal history and the work of supporting others through illness.

Good fit for readers who enjoy

  • Readers interested in pediatric palliative care and nursing-related subjects.
  • Readers seeking accounts of caring for seriously ill children and supporting their families.
  • Readers interested in the intersection of medicine, pastoral care, and personal experience.

Themes

Pediatric palliative careCaregiving and consolationChildhood pain and career choiceMedicine and faith

Based on publisher information and book metadata.

Book overview

As one of the few pediatric palliative care doctors in the United States, Bob Macauley was used to people saying, "I'm so glad I don't have your job." To which he would explain that palliative care is more about living than dying, then offer to share some of the inspiring stories he witnessed on a daily basis. He might mention that also being an Episcopal priest helped him console people in the hardest situations. But he never revealed the true reason for his career choice: he didn't want anyone else to hurt the way he had when he was a kid.

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